Moms Oppose MS: Educating, Donating, Working Together to Overcome it.
AskPatty supports awareness of Multiple Sclerosis during May with month-long MOMS social media campaign
Every mom wants to do the best she can to care for her kids and keep them safe from harm: We make sure our cars are equipped with proper safety equipment like anti-lock brakes and strap them lovingly into child seats and seatbelts to protect them in case of an accident. We make sure they are wearing a helmet when learning to ride a bike. At home, we hide the dangerous chemicals and put away the knives.
But there are some things we can't prepare for, or protect our children from, such as devastating illnesses. Sometimes, our babies grow up safe and sound, and we still find ourselves taking care of them later in life. In that case, we want to ensure they are comfortable and looked after, and do our best to keep life as normal as possible when it might feel out of our control.
Case in point: Multiple Sclerosis
Multiple sclerosis is a chronic, often disabling disease that attacks the central nervous system, which is made up of the brain, spinal cord, and optic nerves. Symptoms may be mild, such as numbness in the limbs, or more severe, causing paralysis or loss of vision. The progress, severity, and specific symptoms of MS are unpredictable and vary from one person to another. Today, new treatments and advances in research are giving new hope to people affected by the disease.
Jody DeVere, CEO of AskPatty.com, is a mom with two adult children fighting Multiple Sclerosis.
Jody's son Joe, now 40, has been fighting MS since 2002 and has a spinal cord injury due to a car accident in 2005 related to his MS. Joe is currently in the Secondary Progressive stage of MS and is taking GILENYA (fingolimod), the multiple sclerosis treatment available as a once-daily pill. Joe says his biggest challenges are staying out of the hospital and free from infections -- and learning to use his new power wheelchair.
When her daughter Marie, age 37 and a mother of two children ages six and eight, was recently diagnosed with the disabling disease, Jody says she "felt like lightning struck in same place twice." Marie is currently labeled as Relapsing Remitting and is taking Avonex shots weekly. While the illness causes numbness in her hands and feet, flu symptoms, and fatigue from weekly shots, according to Marie, "Being a working mom with MS is a challenge in itself."
According to Jody, the challenges of Multiple Sclerosis affect the entire family. "I'm sometimes overwhelmed by the gravity of the disease and the horrible impact it's having on my children, in fact, on our entire family," she says.
Being a caregiver to a Multiple Sclerosis patient can be a challenge.
Joe was hospitalized from December 2012 to February 2013 due to a major exacerbation that caused many complications and took away much of his independent living skills. Since then, Jody has joined Joe's wife Rosanna to become part of Joe's 24/7 caregiver team, and has even learned to be a pureed diet gourmet cook for him.
Rosanna recently won the "Caregiver of the Month" honor from Healthy Women. She is an avid snow boarder and together she and Joe have formed the non-profit foundation Threus.org to help others with spinal cord diseases go skiing, surfing, kayaking, and even white water rafting. Prior to his recent exacerbation, Joe was an enthusiastic paraplegic skier and skydiver, and as soon as he is stable again, the two are planning to scuba dive together. It's an important goal to Joe, who says "I value and want my independence back."
Educating, Donating, Working Together to Overcome Multiple Sclerosis
Jody recently shared "I would trade places with my children in a heartbeat. However since that's not possible I will fight to find every resource to help them and help fund research to find better treatments and hopefully one day a cure!"
While researchers are working to identify new and better strategies to stop its progression, people whose MS has become more disabling—and their family members and friends—need information about how to manage the challenges they face. The first stop to learn more about MS is to visit The National MS Society, a collective of passionate individuals who want to move together toward a world free of multiple sclerosis.
During the month of May, we at AskPatty are partnering with the Multiple Sclerosis Society to raise awareness of the disease with our MOMS (Moms Oppose Multiple Sclerosis) social media campaign.
On World MS Day (Wednesday, May 29, 2013), AskPatty will be hosting a special Twitter Party at 5 pm (PDT), where we will have an assortment of guests on hand to educate participants about the illness, and to discuss ways we can work together to overcome Multiple Sclerosis. We have also created an official MOMS donation page where supporters can contribute directly to the MS Society to help research prevention, treatments, and a cure.
If you are unable to make a contribution online, you may also send a check directly to the National Multiple Sclerosis Society. Simply make your check out to the National Multiple Sclerosis Society and be sure to write on the check notation: AskPatty/Moms Event.
Then, mail your check to
National Multiple Sclerosis Society
Southern California & Nevada Chapter
2440 S. Sepulveda Blvd., Suite 115
Los Angeles, CA 90064
Attention: Marni Deckter
Please join us in our MOMS social awareness campaign as we discuss Educating, Donating, Working Together to Overcome Multiple Sclerosis!